Today July 26 we finally received the results of the test Ricky has been waiting for. It is complicated but the short version is that the tissue shows a gene deletion at the p1 and q19 sites. When these types of tumors show this deletion it is a good prognostic factor. In other words this is the good type of tumor to have if you have a brain tumor. Doctors know that this type of tumor is much more sensitive to chemo and radiation and many studies show a much better clinical course for people with this marker.
We are very pleased about this. In the big studies many patients lived for "extra years" when they had this type of tumor marker. Ricky has an appointment now with Dr Ray Richards on Friday to see what the next step is. There is still a lot to understand and decisions to be made about how to treat this tumor. Much thought, study, prayer and listening to the doctors will go into this next step. Dr Richards will be able to answer some of our big questions and help with the next step. We are lucky to have him as he has now accepted Ricky as a patient.
It is a big important day. This is huge!!!! For Ricky's sake this test today is very encouraging and very needed. He needed a break in all of this. His prognosis has just taken a big step in the right direction. We are all so grateful. I will post a report after our big meeting with Dr Richards on Friday.
Jeff
We are very pleased about this. In the big studies many patients lived for "extra years" when they had this type of tumor marker. Ricky has an appointment now with Dr Ray Richards on Friday to see what the next step is. There is still a lot to understand and decisions to be made about how to treat this tumor. Much thought, study, prayer and listening to the doctors will go into this next step. Dr Richards will be able to answer some of our big questions and help with the next step. We are lucky to have him as he has now accepted Ricky as a patient.
It is a big important day. This is huge!!!! For Ricky's sake this test today is very encouraging and very needed. He needed a break in all of this. His prognosis has just taken a big step in the right direction. We are all so grateful. I will post a report after our big meeting with Dr Richards on Friday.
Jeff
Thanks for keeping us all up to date. We are always wondering what is going on and don't want to overwhelm anyone too much finding out. We are glad to hear good news!
ReplyDeletethis is wonderful news..i think of your family every day and am glad to hear this positive peice of information. thanks for keeping us updated.
ReplyDeleteI am grateful for this good news. The Lord has been very generous with his blessings and miracles. I will continue to pray for more; after all, there is no limit to how many miracles we may be blessed with.
ReplyDeleteWe are so happy to hear about the results. Thanks for the updates. We will continue to keep you in our prayers and hope that things continue to progress positively for your family.
ReplyDelete